We are pleased to announce the signing of a Memorandum of Understanding (MOU) between the Organization for Rare Diseases India (ORDI) and St. John’s Medical College Hospital (SJMCH) to establish a Rare Diseases Care Coordination Centre at SJMCH. This collaboration aims to provide vital non-medical assistance, focusing on raising awareness, prevention, and effective management of rare kidney diseases. This initiative represents a significant step towards improving support for patients and families affected by these conditions.
We look forward to the positive impact this Centre will bring to the rare disease community.
